Patient Registries: Thinking Beyond the Data Collection for Expanding Therapeutic Avenues
Time: 1:30 pm
day: CONFERENCE DAY TWO
Details:
- Delving into Cure Mito’s global patient registry for Leigh syndrome to uncover what makes it unique
- Assessing registry data for regulatory use and recognition
- Evaluating the addition of a new registry: A meaningful contribution or a redundant effort?
