Sophia Zilber

Company: Cure Mito Foundation

Job title: Board Member & Patient Registry Director

Seminars:

Connecting the dots: Understanding Patient Empowerment, Inclusion, and the Landscape of Patient-Developed Registries 3:50 pm

Leigh syndrome patient registry developed by the Cure Mito foundation – a comprehensive look Patient empowerment and inclusion – what do we really mean by that? Examining barriers and potential of patient-driven registriesRead more

day: Day Two